JDRF TypeOneNation Summit Boston 2023
March 25, 2023, Boston, MA
8:30 am
Free
The deadline to register for JDRF’s Greater New England TypeOneNation Summit Boston has passed and we are no longer accepting online registrations at this time. Please contact the JDRF Greater New England Chapter with any concerns by emailing greaternewengland@jdrf.org or by calling Phyllis Kaplan at 617-631-3802.
Schedule
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ATTENDEE CHECK IN / VENDOR FAIR
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WELCOME REMARKS / MISSION ADDRESS / KEYNOTE ADDRESS
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EDUCATIONAL SESSION #1 / YOUTH PROGRAMMING
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LUNCH / NETWORKING / VENDOR FAIR
Bonus Meditation Session by DiabetesSangha -
EDUCATIONAL SESSION #2 / YOUTH PROGRAMMING
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VENDOR FAIR / OPTIONAL ATTENDEE NETWORKING
Speakers
Anastasia Albanese-O'Neill, Ph.D., APRN, CDCES
Director of Community Screening & Clinical Trial Education, JDRF
Mother of a Child with T1D
BioAnastasia Albanese-O'Neill, Ph.D., APRN, CDCES
Director of Community Screening & Clinical Trial Education, JDRF
Mother of a Child with T1D
Dr. Anastasia Albanese-O'Neill has been involved with diabetes care, education, advocacy, research, and as a JDRF volunteer since 2002, when her daughter was diagnosed with T1D and has dedicated her career to improving the lives of people with diabetes. At JDRF, she serves as the director of community screening and clinical trial education, with a focus on accelerating progress toward a cure for type 1 diabetes (T1D). Anastasia spent 14 years in academic medicine and directed the Pediatric Diabetes Clinic and Diabetes Education Program at the University of Florida. As a professor in medicine and nursing, she published research findings on diabetes education, diabetes technologies, and quality improvement in journals including The Lancet, Diabetes Care, and Pediatric Diabetes. She was recently chosen by ADCES as the 2023 Diabetes Care and Education Specialist of the Year. Anastasia plans to retire when a cure for T1D is discovered, but not a moment earlier.
April Blackwell
NASA ADCO Flight Controller, Aerospace Engineer, Writer, and Blogger
Living with T1D since age 11
BioApril Blackwell
NASA ADCO Flight Controller, Aerospace Engineer, Writer, and Blogger
Living with T1D since age 11
April Blackwell is an Aerospace Engineer and lifelong astronaut hopeful who flies the International Space Station from NASA Mission Control. April has worked at NASA for nine years but has been passionate about space since kindergarten when she decided to become an astronaut. A diagnosis of type 1 diabetes (T1D) at age 11 seemed like an insurmountable roadblock as living with the disease is an automatic disqualification on the astronaut application. But instead of giving up she doubled down—learning Russian in high school, studying hard in math, and receiving a full scholarship to attain an Aerospace Engineering degree.
In her aerospace career, April has flown more than 250 hours in experimental Army aircraft and passed qualifications in the Army Special Operations helicopter dunker program, altitude chamber, and parachute course—all of which normally preclude T1D participants. Since she received her NASA flight controller certification, she has acquired more than 3,000 console hours in Mission Control, responsible for piloting the ISS. April hasn't given up on her ultimate dream of becoming an astronaut, but she has added an extra challenge—to be the first person living with T1D in space!
She is passionate about sharing her experiences to inspire fellow T1Ds to push boundaries in pursuit of their dreams.
Marie Botte, CDCES
Family Nurse Practitioner, Boston Children's Hospital
BioMarie Botte, CDCES
Family Nurse Practitioner, Boston Children's Hospital
Marie Botte is a Family Nurse Practitioner and Certified Diabetes Care and Education Specialist with over 20 years of experience caring for individuals with diabetes in a variety of primary care and specialty environments. She has been a part of the Boston Children’s Hospital diabetes program since 2016 where she sees individuals from infancy to young adulthood. For the past several years she has been developing and leading the New Onset Type 1 Diabetes Academy, an innovative interdisciplinary multi-visit group medical visit model that brings individuals newly diagnosed with type 1 diabetes and their families together for support and education as well as the successful utilization of evolving diabetes technologies. Marie is passionate about diabetes education and empowering families with technology to make living with diabetes as easy and painless as possible.
Nicole Patience, MS, RDN, LDN, CDCES, CEDRD
Nutrition Educator and Eating Disorder Specialist, Joslin Diabetes Center
BioNicole Patience, MS, RDN, LDN, CDCES, CEDRD
Nutrition Educator and Eating Disorder Specialist, Joslin Diabetes Center
Nicole Patience (she/her) is a licensed dietitian nutritionist. She supports individuals of all genders at both the Joslin Diabetes Center and the Counseling and Nutrition Center 360 in the Boston area. She is a Certified Diabetes Care and Education Specialist and a Certified Eating Disorders Registered Dietitian Supervisor. For the past 18 years she has worked in the diabetes field to support individuals with diabetes (T1D, T2D, LADA). As part of Joslin Diabetes, she serves in the Young Adult Clinic, the Latino Diabetes Initiative, and the Hypoglycemia Clinic. Nicole aligns with individuals as they navigate the complexities of diabetes care and nutrition with a goal of both safety and the cultivation of a healthy relationship with food and body. Nicole has a host of experiences that have contributed to her professional development. In the decade she spent as a campus dietitian at Temple University, Bryn Mawr College, and Haverford College, she supported individuals as they navigated food with the independence of living away from home, athletic teams, promoted allergy-friendly dining halls, and spearheaded an eating disorder prevention initiative. Proficient in Spanish, she provides bilingual nutrition counseling and provides both individualized and collaborative care. In the last year she presented a host of topics at three national conferences: American Diabetes Association conference in New Orleans, the Association of Diabetes Care and Education Specialists in Baltimore, and the Academy of Nutrition and Dietetics' Food and Nutrition Conference and Expo in Baltimore. While she holds a passion for supporting emerging adults with T1D, her presentation at the summit is focused on the caregiver who lays the foundation of balanced nutrition that young individuals with T1D will build upon for a lifetime.
Sarah Petti
Co-Founder of DiabetesSangha, Full Spectrum Doula and Integrative Nutrition Health Coach, Living with T1D for 18 Years
Session: Living Mindfully with T1D
BioSarah Petti
Co-Founder of DiabetesSangha, Full Spectrum Doula and Integrative Nutrition Health Coach, Living with T1D for 18 Years
Session: Living Mindfully with T1D
Diagnosed as a teenager, Sarah Petti has been living with T1D for 18 years. She has been sharing yoga and meditation with the diabetes community for almost a decade and is one of the co-founders of DiabetesSangha, a nonprofit that brings contemplative practices to the T1D community. As a full spectrum doula and integrative nutrition health coach focusing on people with diabetes, Sarah offers non-clinical evidence-based support to those navigating all aspects of diabetes and reproductive health. To learn more about Sarah and her offerings, including Grace & Growth, her free virtual peer support group for women with diabetes, visit www.thediabetesdoula.com or find her on Instagram: @sarah__petti and @thediabetesdoula.
Anna Sabino, MSW, CDCES
Founder of Finding Smiles Coaching, LLC; Living with T1D since Kindergarten
Session: Taking T1D to College
BioAnna Sabino, MSW, CDCES
Founder of Finding Smiles Coaching, LLC; Living with T1D since Kindergarten
Session: Taking T1D to College
Anna has been living with T1D for over 30 years. She is a graduate of Syracuse University and earned her Master's in Social Work from Washington University in St. Louis. Her areas of expertise include family dynamics, crisis management, anxiety, depression, burnout and post-traumatic stress. Through her private practice, Finding Smiles Coaching, Anna has fulfilled her mission of serving the diabetes community both nationally and internationally. In addition to providing individual counseling, she has nearly 20 years of experience creating and overseeing youth and family programs with organizations such as the College Diabetes Network (now Diabetes Link), International Diabetes Federation, American Diabetes Association, and the T1D Exchange.
Brianna (Bri) Schiavoni, LCSW, LISW
Coach, Counselor, Mindfulness and Movement Arts Instructor, Owner of Mindful Milestones
Living with T1D since age 14
BioBrianna (Bri) Schiavoni, LCSW, LISW
Coach, Counselor, Mindfulness and Movement Arts Instructor, Owner of Mindful Milestones
Living with T1D since age 14
Diagnosed with T1D at age 14, Bri wanted nothing more than to escape her mind and body as she transitioned from adolescence into adulthood. During the years of numbing, running and hiding that followed, she found that yoga and meditation would ultimately provide the sanctuary she so desperately needed; but she couldn’t sit still long enough to explore these practices until understanding the nuances of also having ADHD. Bri’s values, character strengths and skill sets led to the fields of psychology and medical social work, but despite a colorful resume with plenty of fancy titles, is (like each of you) perfectly imperfect.
As a guide, Bri delights in offering accessible forms of meditation for those that find it particularly difficult to settle; but as a fellow practitioner, admits to feeling resistance, discomfort and frustration in response to her body’s limitations. Fortunately, there are gifts in every practice opportunity and in imperfection itself.
Venue
Sheraton Boston Hotel
The Sheraton Boston Hotel is located at 39 Dalton Street, Boston, MA 02199 and is accessible via public transportation.
As the TypeOneNation Summit Boston is a free event for the T1D community, JDRF is not able to provide a discount on parking for our attendees.
Parking Options:
- On-site valet parking is available at the hotel; call 617-236-6172 for more information.
- Rates Subject to Change; Late Fee applies after 4 p.m. on day of checkout
- 0 – 1 Hour $25
- 1 – 2 Hours $36
- 2 – 8 Hours $52
- Over 8 Hours $65
- Prudential Center Garage: The most convenient option is to enter the garage at the Dalton Street entrance. To learn more and view parking rates, visit www.prudentialcenter.com/visit/parking.
For directions to the hotel, please visit https://bit.ly/SheratonBostonDirections.
39 Dalton Street
Boston, MA 02199
Directions
More Info
JDRF TypeOneNation Summit Boston
We are looking forward to an inspirational and informative event, offering networking opportunities, educational sessions, and a vendor fair. Dress is casual and we encourage attendees to wear their JDRF gear, including Walk t-shirts and Ride jerseys!
More information on the agenda, speaker bios, and educational sessions. Below please find more details for the day.
ATTENDEE CHECK IN
- Check In opens at 8:30 a.m. All attendees are required to check in on the second floor in the Grand Ballroom Foyer.
- To expedite the Check In process, please have one member of your party check in on behalf of your group.
- After checking in, you will receive a name tag, which identifies the educational session(s) you/your family have selected, as well as the location of these sessions.
- Coat racks will be available in the Liberty Ballroom. Please note that this room will not be locked, so we ask that you not leave valuables in the room. JDRF and the Sheraton are not responsible for lost or damaged items.
- All children and teens must be accompanied by an adult at the event; and parent(s)/caregiver(s) are responsible for their child’s diabetes management during the event. Youth Programming will be offered at the same time as the educational sessions during the summit.
BREAKFAST AND LUNCH
- A light breakfast and boxed lunch will be provided and will include gluten-friendly and vegetarian options. Please note that the hotel will display estimated carb counts for breakfast and lunch.
- We have made every attempt to meet special diet and food allergy needs but cannot guarantee food service for all requests.
- For other food options, MARKET, which offers fresh grab-and-go items, and SideBar & Grille, the hotel’s casual restaurant and bar, are located on the first floor.
We are excited to return to an in-person summit and look forward to seeing you at the event on Saturday! Should you have any questions or need more information about the day, please email the JDRF Greater New England Chapter at greaternewengland@jdrf.org or call Phyllis Kaplan at 617-631-3802.
Join us for a free one-day, in-person, educational summit event, bringing together all within the T1D community. Learn about research advances, participate in discussions with experts, and meet others living with or caring for someone with T1D. Educational sessions will be focused on T1D care and management, and will be geared for different audiences. The summit will also include a vendor fair featuring industry and community partners. Pre-registration is required for the JDRF TypeOneNation Summit Boston by Wednesday, March 22, 2023 at noon EDT. We cannot accept walk-in registrations the day of the event.
We are excited to host Youth Programming this year!
Our Youth Programming will focus on kindergarten through 7th grade. This program will host children living with T1D and their siblings. Volunteers will lead activities and support your child(ren) as needed. Children can expect various activities, crafts, games, and much more!
Youth Programming will be offered at the same time as the educational sessions during the summit.
JDRF staff and volunteers, including licensed healthcare providers, are not permitted to treat high or low blood sugar. Parents / Caregivers will be contacted if their child needs help with their T1D management during the program.
Mission Address: Improving Lives
While JDRF remains laser focused on curing T1D, learn how we are simultaneously driving advances to improve the lives of those living with T1D today. Join us to learn about current JDRF research that will contribute to advanced diabetes technologies, reduced chronic complications, and improved quality of life.
Anastasia Albanese-O’Neill, Ph.D., APRN, CDCES, JDRF Director, Community Screening & Clinical Trial Education, Mother of a Child with T1D
Keynote Address: Mission: Diabetes Control
April will talk about her lifelong goal to become an astronaut and share how her professional experience and type 1 diabetes management intersect. Learn how life with diabetes can prepare you for your dream job!
April Blackwell, NASA ADCO Flight Controller, Aerospace Engineer, Writer, and Blogger, Living with T1D since age 11
Educational Sessions
Attendees will have the choice of attending two of the following five educational sessions.
- Beep or Buzz? Human Factors in the Cockpit vs. Diabetes Devices—How often do you think about how diabetes data is delivered to you? What works and what could be better? Buckle your seatbelt and put your tray table up as we take off into the world of human factors! We will even design our own ideal diabetes device and compare settings with fellow diabetes captains! Intended Audience: Adults with T1D; Teens with T1D and Parents / Caregivers Also Welcome
- From Surviving to Thriving with T1D: Tips and Tricks for the First Few Years—The focus of this session is to help answer common questions and concerns that arise when managing type 1 diabetes. We will discuss adapting to the new norm of diabetes, the importance of understanding diabetes fundamentals, how diabetes technology can help you succeed, and facilitating independence while developing strategies to manage your diabetes successfully! Intended Audience: Parents / Caregivers of Newly Diagnosed or Anyone with T1D Looking for a Refresher
- I’m Hungry! Nourishing Kids with T1D—Why, what, when and with whom we eat becomes front and center in diabetes care. This workshop will start with the basic role of carbohydrates and goes further to unpack the myriad factors that complicate insulin dosing and glucose levels after eating. Examples of continuous glucose monitor tracings with different foods illustrate some of these challenges, with constructive ideas to address them. This session will explore how diabetes can change a family’s relationship with food, and encourages creative ways to incorporate curiosity, mindfulness, and compassion to preserve connections at mealtime. A case study will tie together these concepts as you follow one family’s journey. Intended Audience: Parents / Caregivers of Newly Diagnosed or Anyone with T1D Looking for a Refresher
- T1D Prevention and Cure: Why Screening Matters—Join this interactive session to learn about JDRF’s mission to improve lives today and tomorrow by accelerating life-changing breakthroughs to cure, prevent and treat T1D and its complications. This session focuses on type 1 diabetes risk screening and its importance to prevention and cure. The session includes some fabulous prizes!
- Whose Diabetes is it Anyway?—Diabetes affects everyone in the family, and that means we each have a role to play. Does everyone in your family know their role when it comes to diabetes? What happens when the roles shift and kids become tweens and then teens? “I wish he would just remember to bolus”…sound familiar? In this session we will dig into defining, and establishing roles, boundaries and how to maintain family sanity from diagnosis toward young adulthood. Intended Audience: Parents / Caregivers
- New This Year—Bonus Session: Meditation and T1D: Bringing Wisdom to Life with Diabetes—Join us after lunch (and before the second educational session) for this special session! In this session, facilitators from DiabetesSangha will guide an introductory meditation practice, discuss strategies for bringing meditation into everyday life, and share some of their own journeys bringing a meditative mind to diabetes care.
For more information on frequently asked questions please view or download this helpful document: JDRF TypeOneNation Summit Boston 2023 FAQs.
Event Contact
Greater New England Chapter
7814310700 | greaternewengland@jdrf.org
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