Receiving a T1D diagnosis can be a traumatic and an isolating experience, whether it’s you who is affected or someone you love. Even if the diagnosis was many years ago, living with T1D can be overwhelming at times. But you’re never alone. Below you’ll find a list of local individuals and families who are ready to answer your questions or simply lend an ear. You can ask them a detailed question or simply tell them that you are looking to connect. If you would like to speak to JDRF Staff, you can contact Carling Nolan at firstname.lastname@example.org.
*By submitting a question, you agree that you are over the age of 18 years old and live in the United States. Your initial question will be visible to JDRF staff, but your subsequent conversation afterwards will be confidential between you and the volunteer.
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Mount Joy, PA
My son, Will (age 13), was diagnosed at age 6. He’s been very active with sports (soccer and basketball), friends, and travel since his diagnosis. We started DIY Looping using the Dexcom G6 CGM and the Omnipod Insulin Pump in November of 2019. Our T1D journey has been made better by the many connections that we’ve made through the JDRF and those in the T1D community. Please feel free to connect with me if I can be of support to you or if I can help connect you to others in the community.
Robinson Township, PA
My son, Nick, was diagnosed with T1D at age 12. He’s 26 now, so we have been through it all – high school, driving, college, moving away from home. I love food and cooking. Nick and I have also taken up running and completed our first half marathon last year!
I was diagnosed at the age of 17, and I learned firsthand the difficulty of managing diabetes and a degree. I currently work in robotics, traveling weekly and juggling diabetes with a constantly changing schedule. I use an insulin pen with Dexcom G6. I love music, startups, and -you guessed it- travel.
I was diagnosed at 11 months old, and I had a wonderful support team to help me navigate the early years and set me up for success in high school, college and beyond. I enjoy a variety of activities (traveling, half marathons, hiking, paddle boarding). I’m a longtime fan of Dexcom and Tslim, and I’m familiar with insulin pens. I also have a nephew who was diagnosed at 2 years old. Happy to listen, share, or just shoot the T1D breeze!
South Fayette, PA
I was diagnosed when I was 18 and my daughter was diagnosed when she was 7 (she’s now 13). After years of MDI, I switched to Omnipod and Dexcom and my daughter was a native on that technology. We keep relatively low carb and are very active in martial arts, hiking, and other fitness activities.
My son, Ethan, was diagnosed with Type 1 Diabetes 8 years ago at the age of 4. He uses both a Dexcom and the T-Slim insulin pump with Control IQ to manage his blood sugars. Ethan loves anything outdoors. Our family travels around the country to National Parks every summer! I am also an Autistic Support teacher and Special Education Leader at our local school district so I can help navigate those tricky back to school transitions and help you advocate for your child!
My son was diagnosed in 2012 when he was 8, and he is now 16 years old. He plays hockey on 2 different teams and is very active when he isn’t on the ice. He uses a T-Slim pump and the Dexcom G6.
I have had T1D for 27 years (I am 37 and was diagnosed in 1993 at 10 years old) and my daughter has had T1D for 5 years (She is 12 and diagnosed in 2016 at just shy of 7 years old). We have both done manual injections and pricked fingers but now are both on Omnipod insulin pumps and Dexcom CGM. We are a family of 4 and are all very involved in the local JDRF chapter. Happy to answer any questions or concerns you have about managing blood sugar, living with T1D, or just to chat!
I was diagnosed at the age of 12 and now live with my wife, Jodi, 4 chickens, 3 goats, 2 dogs, and a cat in Canonsburg, PA. My wife and I love to travel, and I have experience managing diabetes in countries all over the world. I am also an avid fly fisherman and golfer. I look forward to helping others learn to manage their diabetes with an active lifestyle!
My youngest son was diagnosed with T1D a little over 5 years ago when he was 9. He has a Dexcom and uses the Omnipod System. I volunteer at Camp Kno Koma and enjoy helping with JDRF outreach.
My name is Lyndsey and this is my daughter Kyleigh. She was diagnosed with Type 1 Diabetes 8 years ago when she was 8 years old. We have had some trying times with type 1 but we are learning. She is currently using the Medtronic 670G insulin pump and hasn’t changed her mind about using the CGM yet but hopefully soon! I’ve heard wonderful things about it. We live in Martinsburg, WV and look forward to meeting other type 1 families and help anyway that we can. We are in this journey together!
My daughter, Millie was diagnosed with T1D at the age of 16 months, she is now nine. Millie enjoys basketball, swimming, dance, playing with her dolls, and crafting. She has been on an insulin pump and Dexcom since the age of two. In June of 2019, we started DIY looping with her Omnipod and Dexcom devices.
Hello, our son was diagnosed with Type 1 Diabetes at the age of 6 and Celiac disease at the age of 9. He is now 19, a Freshman at WVU, and a member of the Pride of WVU: The Mountaineer Marching Band. He is very active and played golf, baseball and hockey as a youth. He uses a T-slim pump with Control IQ and a Dexcom G6. I have been involved with JDRF in our area for years and my motto is: it takes a village! I would love to continue to assist others in this journey of navigating T1D, so please do not hesitate to reach out!
My daughter and I both have T1D. I was diagnosed at age 34 (I’m now 50) and my daughter was diagnosed at age 7 (now 14). We both use the Loop app with Omnipod and Dexcom G6, which has been great for us. Living with T1D is an everyday challenge, but we’re grateful for all of the wonderful people we’ve met through JDRF!
I was diagnosed with T1D when I was 13 years old. I am the Press Secretary for the Office of the State Treasurer and before that I was a TV news reporter/anchor for 7 years. I wear an insulin pump (Medtronic 670G with a CGM). I’ve attended and volunteered at diabetes camp for years.
Hello! I’m a mom of three kids. My middle child, Ryan, age 17, was diagnosed with T1D almost 10 years ago. He currently uses a T:slim pump with Control IQ and a Dexcom CGM. We’ve navigated school issues, travel issues, pre-teen and teen years with T1D. We would love to help others with the transition to life with T1D! Community connection is so important and helpful when living life with T1D.
I have been involved in helping type one families in WV since shortly after Aaron was diagnosed in 2004 at age 11. I am married and I work as an attorney in Charleston, WV. We have a total of six kids who came through our home at different ages and stages of life we call our kids. Aaron was formally adopted but others were handled as legal guardians or unofficially depending on ages. I have volunteered for JDRF Outreach since 2004 and helped lead a statewide Walk since 2004. I have two rescue dogs also – Boogie and Roscoe.
Boiling Springs, PA
Hello! We have a daughter who is now age 11. She was diagnosed at 8. She uses Omnipod and Dexcom. This is definitely a journey and one that is not easy to travel alone. If you need someone to chat or pray with along the way, please do not hesitate to reach out. Things will get better-don’t forget to breathe!
Our, now grown, daughter was diagnosed with Type 1 diabetes in January of 1995 at the age of 2. I am forever grateful for the support and friendships that created through JDRF to assist our entire family through the challenges of the disease.