150 Youth with Type 1 Diabetes Selected to Participate in 2019 JDRF Children’s Congress in Washington, D.C.
New York, June 19, 2019—JDRF, the leading global organization funding type 1 diabetes (T1D) research, announced the selection of more than 150 of youth delegates who will be traveling to Washington, D.C. for the JDRF 2019 Children’s Congress from July 8-10. The Delegates will be lobbying their Members of Congress to remind them of the vital need to continue supporting T1D research that could reduce the burden of this disease and ultimately find a cure.
The children—ages 4 to 17, representing all 50 states—will participate in a number of activities on the Hill, including a Congressional Committee hearing to share personal testimonies that highlight the daily struggles of living with T1D and the need for continued funding for research projects such as the Special Diabetes Program (SDP).
Joining the U.S. Delegates will be five International Delegates traveling from Australia, Canada, Israel, the Netherlands and the United Kingdom. Together, the JDRF Youth Delegates will convey a clear message to the Federal Government that T1D is a global problem that requires a global effort.
“Every day these children and their parents face the burden of type one diabetes, by sharing their stories they become the most powerful advocates we have in fighting type one diabetes. The delegates are a representation of millions of other families like mine who need the support of the government to help us end this disease,” says Aaron J. Kowalski, JDRF President and CEO. “Children’s Congress gives the T1D youth community a unified voice in front of Congress and a way to urge our government leaders to continue supporting research.”
Serving as Chair for JDRF 2019 Children’s Congress will be Katama Eastman of New York, NY, whose 15-year old daughter, Merrill was diagnosed with T1D at 15 months. Eastman is Board President of the JDRF New York City / Long Island Chapter. As Chair of the event, she will help engage, support and energize all these Delegates and their families during the advocacy efforts up on Capitol Hill.
For a video of highlights from past JDRF Children’s Congress’, please click here.
About JDRF Children’s Congress
JDRF Children’s Congress was inspired by (then) eight-year-old Tommy Solo from Massachusetts, in 1999. He overheard adult JDRF volunteers talking about going to Washington, D.C. to talk to Congress and thought it was important that children go, too, and make their voices heard. JDRF Children’s Congress inspires national lawmakers to remember the children who live with T1D when making decisions about medical research funding and voting on other important Federal Government issues relating to diabetes. The young Delegates’ personal stories, told in their own words, are often more powerful than almost any other type of education a legislator and staff can receive.
Tommy’s idea quickly became a well-developed event, first held in 1999. Since then, JDRF Children’s Congress has occurred every other year.
To learn more about JDRF Children’s Congress, please visit http://cc.jdrf.org/.
JDRF is the leading global organization funding type 1 diabetes (T1D) research. Our mission is to accelerate life-changing breakthroughs to cure, prevent and treat T1D and its complications. To accomplish this, JDRF has invested more than $2.2 billion in research funding since our inception. We are an organization built on a grassroots model of people connecting in their local communities, collaborating regionally for efficiency and broader fundraising impact, and uniting on a national stage to pool resources, passion, and energy. We collaborate with academic institutions, policymakers, and corporate and industry partners to develop and deliver a pipeline of innovative therapies to people living with T1D. Our staff and volunteers throughout the United States and our six international affiliates are dedicated to advocacy, community engagement and our vision of a world without T1D. For more information, please visit jdrf.org or follow us on Twitter: @JDRF