The JDRF 2023 Children’s Congress was an incredible success! Delegates forged new connections, told hundreds of stories, and, as a result, made real progress towards achieving key aspects of our Advocacy agenda. The delegates focused on two areas of JDRF’s Advocacy Agenda: renewing the Special Diabetes Program (SDP) and the insulin affordability crisis.

The SDP currently provides $150 million annually to T1D research through the National Institutes of Health (NIH), the country’s premier medical research agency. Additionally, it complements JDRF’s research efforts, allowing JDRF and the NIH to collaborate to advance T1D research as quickly as possible. The SDP is set to expire in September and renewing it is JDRF’s biggest priority—and the #1 job for the Delegates.

Right now, there is legislation to renew the SDP for two years at $170 million annually. This would be the first annual increase in funding in 20 years.

Congress also must address the cost of insulin in America. While recent measures taken by pharmaceutical companies to lower the cost of their insulins are appreciated, more must be done. That message was heard loud and clear.

Our delegates traveled to Capitol Hill and were able to meet with Wisconsin Senators Tammy Baldwin and Ron Johnson to share their stories. They were also able to attend a Senate Appropriations Committee hearing led by U.S. Senators Patty Murray and Susan Collins.

While the delegates did an amazing job convincing our legislators to renew the SDP and do more to fix the insulin affordability crisis, you can use your voice to help secure continued Federal funding for important diabetes research, inform health and regulatory policy, and improve the quality of life for those affected by T1D – until we find a cure. Sign up to be an advocate today!

This event was made possible by:

Delegate Social Sponsors Dexcom, Vertex, and Zeris Pharmaceuticals

Supporting Sponsors Insulet and Lilly

Diamond One Society Partnership Sponsors Ford and Marshalls