Embarking on the poignant journey of Type 1 Diabetes (T1D), our family’s connection runs deep as our beloved daughter, now a spirited 2-year-old, was diagnosed at the tender age of 11 months. The challenges that unfolded with her diagnosis have been both profound and transformative, shaping not only our daily routines but our perspectives on resilience, courage, and the boundless possibilities that technology brings to the T1D community. In sharing our story, we hope to shed light on the unique struggles faced by our youngest warriors and to underscore the importance of continued advocacy for a cure.

Description of Connection to T1D:

Our journey with T1D began when our daughter, at just 11 months old, fell gravely ill. What initially appeared as a persistent ear infection escalated over a week, leading us through three walk-in clinic visits and two ER trips. It was only after insisting on seeing her pediatrician that we discovered she was in severe Diabetic Ketoacidosis (DKA). The harrowing experience highlighted the misconception that young children couldn’t be diagnosed with T1D. From that moment, T1D became an integral part of our lives, a relentless force that demanded our attention and advocacy.

Challenges Faced:

Navigating the aftermath of diagnosis proved to be an arduous journey. Initially, we battled with insurance and medical supply companies to ensure timely access to vital resources. As our daughter grew, new challenges emerged, from the unpredictable eating habits of a toddler to the ongoing struggle of keeping her infusion sites secure. Treating lows becomes an added challenge when she doesn’t comprehend the urgency. The journey has been marked by persistent hurdles, but each one met with determination and a commitment to providing the best possible care for our daughter.

Lessons Learned:

T1D has been an unwavering teacher, forcing us to relinquish control and embrace the unpredictable nature of the condition. The daily fluctuations and nuances of diabetes demand a flexibility that goes beyond what we thought possible. In witnessing our young daughter face the challenges with unwavering courage and bravery, we’ve learned that strength knows no age. The resilience she demonstrates on a daily basis is nothing short of inspiring.

Source of Hope and Inspiration:

What instills hope in our hearts is the continuous advancement in technology. The innovation in T1D management tools allows our children to lead lives that are as close to normal as possible. From continuous glucose monitors to insulin pumps, these technological marvels pave the way for a brighter future for those living with T1D.

Support from JDRF:

Our hope for the future rests on organizations like JDRF and their unwavering commitment to advancing research and finding the cures. The ongoing fight for cures is paramount, and we look to JDRF to continue championing the cause. The progress made in technology and treatment is a testament to the impact of organizations like JDRF, and we join them in the collective dream of a world without T1D. Together, let us keep fighting for a cure and a future free from the challenges imposed by Type 1 Diabetes. -The Fulchko Family