Reality: Clinical trial participants can leave a trial for any reason, at any time. Before joining a clinical trial, you’ll be asked to sign an informed consent form, which outlines the details of the trial. It’s not a contract, though—even after you sign it, you can leave the trial at any time.
Is a clinical trial right for you and your family?
Clinical trials already have all the participants they need.
Taking part in a clinical trial is scary and unpleasant.
A clinical trial might help people in the future but won’t do anything for me right now.
More T1D Clinical Trial Myths and Realities
Myth: Once I sign up for a clinical trial, I can’t get out of it if I no longer want to participate.
Myth: Taking part in a clinical trial is too disruptive to my life.
Reality: When you’re considering participating in a clinical trial, it is important to think about how much time you are willing to spend and to get a sense of how many site visits will be required, how long the trial will run, etc. Some trials may require just a few site visits without any overnight stays, while others may be more time-consuming. Some trials even allow you to provide information remotely through an electronic device, for example, or offer transportation to and from the study site so the trial will fit better in your schedule.
Myth: Clinical trials are a last resort.
Reality: Clinical trials can offer an option for those who have exhausted other therapies, but they can also be an option at any point after your diagnosis. Any time you’re not happy with your current treatment, a clinical trial may be a way to access a therapy that may work better or to receive more personalized medical care. Some people also choose to participate because they’re motivated to help move research forward.
Myth: If I’m in the placebo group of a clinical trial, I won’t get medical treatment.
Reality: Many clinical trials do not use placebos; some compare a potential new therapy against an already approved therapy. Participants who do receive a placebo still receive personalized, quality care from top doctors as part of the study.
Join the All of Us Research Program
JDRF is proud to partner with the National Institutes of the Health on All of Us Research Program. The goal of this program is to gather health information from more than a million Americans to accelerate precision medicine research and medical breakthroughs, and improve health–and it's critical that the T1D community is represented.Learn more